Mark Talks about everything

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This was Taken off Facebook, so it might not read exactly as it was expressed, Living with someone that is ill and suffering is one of the hardest things in anyone’s life, the worry, stress, concern and of course fear is a daily nightmare to someone supporting another, questions like do i do enough, am i doing the right thing, you question yourself again and again. Mark is doing a fantastic job of supporting Vicky maybe something that is not said enough as even he focuses everything onto Vicky too, Mark your a star !! anyway here is what he recently wrote
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Hi everyone Mark here. So after the paramedics came out the other night, Vic hasn’t been herself at all. In fact today she has slept all the way through til about 8pm which isn’t like her at all. So after she has one of her spasms, this is what happens! Her medication doubles! I have to say the spasm she had the other day was the worst one I’d ever seen her have. We always agreed that through this we would record everything we could to show people what she goes through. But this spasm was so bad I didn’t even think to pick up the camera. She was screaming in agony, she couldn’t stop being violently sick and was absolutely saturated in sweat and struggling to breathe and going in and out of consciousness. We thought that she had the worst of her spasms last year. But this has proved to us that it’s not going to get better at all. In fact it will continue to get worse. I’m dreading what will happen if she ever has a spasm that tops this one. But thank you for all your supportive messages and posts and a huge thank you to everyone that’s out there trying to help and raise money for vicki. We know the op is less than 50 50 but it’s her last chance xx

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Thank you Everyone

Hey guys, I won’t be on long as I really need to go back to sleep πŸ˜”. But I would like to take this opportunity to thank all of you for your support, messages, donations and friendship through what is proving to be the hardest point of my life so far. This year I have made some friends that I will never be able to thank enough for showing me so much love since the start of, and before, this campaign. I’ll try to name as many as possible, if I forget anyone please don’t hate me. My brain isn’t working too well right now. So I’ll do my best. Firstly I have to do a mahoosive shout out to my dragon family… Davey and Charlie started promoting the fundraiser and giving away the shirts live on their shows on motiv8 as well as playing tracks for donations. Not only that, chic has offered all of his body hair! πŸ˜‚ If we get Β£1000 donated with the donation name ‘the ego made me do it’, this crazy Scottish bastard is going to get FULLY waxed! πŸ˜‚ that is still going. Plus you have to understand these two aren’t just friends, they’re brothers! So when they decided to have a boxing match… With each other… For my campaign, I actually nearly fell over!! Absolute legends the pair of them and I know that I can rely on them to have my back 24/7 no question. Love you boys more than you know and I can’t ever thank you enough for what you’re doing πŸ˜˜Ady has started selling baseball caps for Β£14 and is donating Β£4 from every sale to us. You absolute star πŸŒŸ. Thank you so much for this and for all the t shirts you’ve done for us. What a gent. Tony Camper is also organising a charity boxing match for us which will take place in March. It’s all being sorted as we speak! I’ve never had so many men fight over me before!! πŸ˜‚ πŸ˜‚ πŸ˜‚ πŸ˜‚ We will be attending any events held so we really can’t wait to meet everyone face to face β˜Ί. Also we would like to thank Rach JohnsonBrenda LuluJane CelaschiSonia MerchantSara BernardCarla Felthamand anyone I’m forgetting that helped, donated, bought tickets, shared repeatedly, handmade items, or just took part in all the raffles. β˜Ί so much time and effort was put in by all of you and I am so so grateful. Love you all ladies. πŸ€— I’d like to not only thank, but I wanna give a massive hug to my close friends Neil Johnson and Janice Johnson. I’ve known Neil a long time. We have seen each other through some of the hardest times of our lives. In the past I have felt like he was the only person to actually understand me. He saw when my jackhammer oesophagus started and progressively got worse. He’s had to take me to A&E on more than one occasion before I got diagnosed. He’s held my hair back(when I had hair) while I puked luminous green bile, he’s had to hold me up in the shower because I’d been so ill and puked all over myself and was too weak to stand. At one point he was the only person that believed me. He started the Web page www.froggy.life/wp/so that everyone can follow my progress. He constantly updates it. So if you all want to save or share the page that would be great for people to follow off of Facebook with more pics than get posted on here. He’s such a great friend so when he met his wife, Jan, I finally saw him truly happy and in love and I was absolutely over the moon that he had found, what I believe to be, his soul mate πŸ˜. Jan suffers terribly with fibromyalgia bless her. Most days she struggles to move bless her. So you can imagine my Suprise when she turned up on my wedding day in her dressing gown and slippers just so she could throw some confetti. Then she even managed to come to the reception, all night!! Love you pickle. Love you both to the moon and back.
I’m now knackered and need to sleep so if I’ve forgotten anyone I’m so sorry. No doubt I’ll say thank you to a few more before Xmas. But thank you to each and everyone of you reading this. Your support and love is the biggest thing that got me through this year. I’ll never be able to thank you all enough. πŸ˜˜ πŸ€— πŸ’• xx

There are days when I sit and wonder about life and how we all travel though it
I think we all have good and bad, hard times and those few and far between
moments that some of us consider happiness

Vicky or if you like Froggie has found herself thrown a curve ball, yes of course we all care and try to help, but the final word is she has to cope with it day in and day out without a moments letup or a light at the end of that tunnel, today she posted a glimpse of a moment of her life. some will see it as a cry out and some as attention seeking I suppose. I see it slightly different I suppose as Im sure some of you do too, The words like unfair, unkind, actually I suppose there are many but as I said different, Vicky and I meet at the beginning of all this although we both didn’t know it at the time and I have watched it steal her life from not only her but from her family and friends, I have watched the tears and listened to the anger often followed by more tears

I have watched the odd moment of happiness

I know you have all helped and some have moved Vicky in the help you
have given, you see its not what you gave but the point you tried, a glimpse of happiness isn’t about money or possessions, its about what you can do for others and what others do for you, so here you have it my bottom line

I haven’t pushed the go funding or paypal as I believe people should
find it in their own hearts to want to help, so I wont say anything here
accept say 
I wish you all A merry Christmas and a happy new year
and if at any moment you have a few quid going spare over 2018 please consider those less
fortunate there are so so many good causes, the homeless, The poor children around the world, animals that need help to survive, there are so so many

and maybe in all that give a few moments to people like Vicky who
suffer so badly they have lost their heart and energy to help others

each and every day for the rest of her life

 

 

Actually feel so so low. Christmas needs to just do one as quickly as possible. Maybe I could decorate my food bag and pretend it’s a roast…. Cuz that’s as close as I’m getting to actually eating one! 3 Christmases in a row that I’ll be cooking for everyone and then spending the rest of the day crying on the sofa taking medications and . Fun eh? I hate it now, absolutely despise it. Might just curl up and sleep through it… Oh wait, my Insomnia won’t let me do that. Please can someone just smash me over the head and wake me up when it’s over. Or maybe don’t even wake me up. I’m miserable. My life is dead. I don’t have a quality of life at all. I’m supposed to spend the rest of my life like this? So I will never again eat food, drink merrily, have energy or be out of pain for the rest of my life. I’m supposed to never again eat at Xmas, easter, pancake day etc. Urgh. Can’t even enjoy anything anymore cuz I know that I’ll regret it and end up in agony. What the fuck kind of life is this?! πŸ˜’. I wont be sharing the go fund me link again. You’ve all seen it enough times now, the shares aren’t happening and the donations have stopped completely. Think maybe its time to admit defeat and face the fact that this is me now πŸ˜” I don’t know what else to do really. Sorry for moaning