Aw I feel so blessed tonight. Mark has run me a lovely hot bubble bath. But before I get in, Levi offered to shave my head because my patches are looking awful!!! Nothing like a pampering when you feel as rough as I do right now… Hence why I look so bad in the pics…. But im not moaning! ☺
I know its nothing to do with the jackhammer oesophagus
But I thought it would be interesting for other alopecia sufferers
Will do more of a write up when I can
Please keep sharing our story and the links to our videos and go fund me the posts are being shared by the minute which is amazing!!
But guess what… STILL SMILING!!! ☺
— feeling pained.
I am very lucky to have such a great family and friends
What can I say about my Vickys gofundme, in her words
“Im just a normal person and I hate asking anyone for anything from anyone”
I have know Vicky for a long time no, the picture is of her birthday, at this time she had been suffering some time with Alopecia and something we didnt understand which now turns out to be the Jackhammer oesophagus
Vicky spent 99% of her birthday dinner in the toilet being sick
I just cant find words to explain it all, I know their are millions of people out there with life threatening illnesses , more each day and I can understand the carers, family and friends of these people feelings
I think she hit it on the handle when she said ” I just want to feel well” she knows life is never again going to be easy, but she just wants a life back
Me (Neil) and Vicky
If we are realistic, the operation will cost more than the £30,000 that we are aiming for. But we didn’t want to seem like we were asking too much to go higher…. So if we can get over £30,000 that would be absolutely fantastic…. All we can do is try
Well This Man is my Rock
Mark is my full time carer. I have been so lucky to find a person that cares about me and for me, We got married on 25th March 2017 after Mark had seem me get so worse, I think he thought I was going to die
It was a slither of light in the darkness for me and I seemed to be ok for a while after this day
I will add more picture soon, I smile when I see them 🙂
Vicky discovered she had Alopecia , but used it to do good and did a photo shot for awareness.
I personally feel the Alopecia was a part of what has lead to her Jackhammer oesophagus. so much stress and misunderstanding by Doctors and the Hospitals
Froggys world is to try and give you an insight into Vickys long term problems that have lead to the jackhammer oesophagus
and to help explain the operation which involves the cutting of the muscles in the oesophagus to allow food to freely pass from mouth to stomach.(which is an impossible task at present)
Jackhammer oesophagus,is a condition that prevents a sufferer from eating solid food without causing spazms, in the chest that are on par with a heart attack.she has also had so much stomach acid travel from her stomach to her oesophagus that its caused scarring from the acid and makes it impossible to enjoy food at all
We are trying to raising funds for an operation called a hellers myotomy
Even if we don’t raise all the funds needed,whatever we do raise will go towards adaptations to make her life easier.
Thank you for taking the time to came and look 🙂
I apologise for the crappy quality of this video… I was in pain and tried to go as slow as I could… But I had to do something… Please please can you watch and share this as much as you can… Every view will make a difference… I need everyone to understand how desperate I am… Thank you to everyone that's been so supportive so far… You're finally giving us hope ☺www.froggy.lifehttps://www.gofundme.com/please-help-vicki-get-the-op
Posted by Victoria Louise Weller on Saturday, 19 August 2017